ðŠI create resources to help people adapt to living with chronic illness so they can thrive.
When plans fall apart ðŋ
|
Hi Reader, Can I tell you something I wish someone had said to me early on in my diagnosis? Changing the plan isn't failing. It's actually one of the most important skills you can build when you're living with chronic illness. For a long time, I treated flexibility like a last resort â something I reluctantly reached for when my body left me no other choice. And every time I used it, I felt guilty about it, like I was somehow proving that I couldn't handle things the way I was supposed to. What I've learned since then is that the guilt was never really about flexibility. It was about the story I was telling myself that a good day meant sticking to the plan no matter what, and a bad day meant I had fallen short. Shifting that story changed a lot for me. And that's what this week's post is about. I'm walking through seven ways to build flexibility into your daily life with chronic illness â not as a backup plan, but as an actual strategy. Things like letting your routine shift when your body asks for it, staying open to adjusting your treatment plan, and modifying the things you love rather than walking away from them altogether. If you've ever caught yourself pushing through when you knew you shouldn't, or felt guilty for changing course, this one's for you. âRead the full post here.â Take good care of yourself this week. |
April Smith | The Thriving Spoonie
ðŠI create resources to help people adapt to living with chronic illness so they can thrive.
Hi Reader, I've been thinking about the moment when the question changes. Not "why do I feel this way" â but "is this just how it is now." If you've been there, you know the difference. The first question assumes there's a findable answer. The second has stopped assuming that. This week's post lives in the space between those two questions. It's about why most symptom tracking attempts fall apart (and why that's not a consistency problem), what pattern recognition actually looks like when...
Hi there Reader, Can I tell you about a recent dinner at my house? Frozen chicken. Microwave mac and cheese. A bag of frozen broccoli. There was a vegetable on the plate, so it counted. And honestly, that was the whole standard that night. I've been thinking a lot lately about the gap between what pacing is supposed to look like and what it actually looks like when you're living inside a real day. The ideal version sounds reasonable enough â know your limits, stop before you're depleted, rest...
Hey there Reader, Something I've been thinking about lately â and finally wrote about this week â is how energy tracking advice almost always skips the part where it tells you what to do when the data doesn't lead to a fix. Most of it assumes you're starting from neutral. That a bad day is an outlier to troubleshoot. That if you just find the right system and stay consistent, you'll get ahead of your crashes. For a lot of us, that's not how it works. And when tracking is built on that logic,...