Hey Reader, Have you ever looked around your space and thought, âI want to clean⌠but I just canât todayâ? Same. And itâs not because weâre lazy. When youâre living with chronic illness, thereâs often this tug-of-war between needing a calm, tidy space and not having the energy to make it happen. That tension can pile up just as quickly as the laundry does. So what if there were a middle ground? This week on the blog, Iâm doing something a little differentâand Iâm really excited about it. Iâve...
7 days ago â˘Â 1 min read
Hey there, Reader! Today marks the start of Disability Pride Month here in the U.S., in honor of the passing of the Americans with Disabilities act in July of 1990. Disability Pride Month isnât flashy. Sometimes itâs quiet. Sometimes itâs complicated.And sometimes it looks like finally deciding to stop apologizing for your limits. This week on the blog, Iâm sharing a newly updated post about what disability pride means to me nowâand why it matters more than ever this year. Iâm diving into how...
13 days ago â˘Â 1 min read
Hey there, Reader!Last week, I was at my computer trying to get back into a routine after several days of flare-ups when it hit meâfast. A sharp, pulsing pain behind my eye. Colors started shifting. My vision felt off. I couldnât even keep my eye fully open. I recognized the signsâit was a migraine, and a bad one. But that didnât make it any less scary. Especially because I was already dealing with an IIH flare-up, which had me feeling off-balance even before this started. My anxiety spiked....
20 days ago â˘Â 2 min read
Hi Reader, Ever notice how often we hear stories about people with chronic illness âbeating the oddsâ or ânot letting their condition stop themâ? At first, those stories sound inspiring. But there was a time when I let that message shape everything â how I saw myself, how I treated my body, even what I believed made me âworthy.â I didnât realize that message â the one that tells us weâre only doing well if weâre pushing through â was doing far more harm than good. And if youâve ever felt like...
27 days ago â˘Â 1 min read
Hi Reader, For years, I let my to-do list decide how I felt about myself. If I crossed everything off, it was a âgoodâ day. If I didnât, I felt lazy, unmotivated, or behindâeven when my body was clearly asking for rest. It took a lot of unlearning, but I finally realized that productivity isnât just about getting things done. Itâs about managing my energy in a way thatâs actually sustainable. This weekâs blog post is all about how I made that shift: đ My Top Tips for How to Balance Rest and...
about 1 month ago â˘Â 1 min read
Hi Reader, Have you ever felt like no matter how much you rest, itâs never enough? I used to think saving energy just meant resting more.Rest after a task. Rest between tasks. Rest to recover from doing too much. And while rest is important, Iâve learned something else along the wayâsomething I didnât hear often enough when I was first diagnosed: Rest isnât the only way to protect your energy.Prevention is, too. The things that made the biggest difference for me werenât nap schedules or...
about 1 month ago â˘Â 1 min read
Hey Reader, Have you ever looked at your routineâthe meds, the appointments, the endless decision-makingâand thought, âThis just isnât sustainableâ? Youâre not alone. And more importantly, youâre not doing it wrong. Weâre spoonies. We adapt, adjust, pivot, and planâconstantly. But somewhere along the way, our daily routines can get so overloaded that they stop supporting us⌠and start draining us instead. Hereâs the part no one tells you: Your routine doesnât need to be perfect. It doesnât...
about 2 months ago â˘Â 1 min read
Hi friend, If you tried to read my latest blog postâI'm so sorry! There was a hiccup with the link, and it didnât go where it was supposed to. The good news? Itâs fixed now, and Iâve got everything for you right here: đ Read the post: How to Take Back Your Power with Medical Self-Advocacy Whether you've been dismissed, talked over, or made to feel like you're âtoo much,â this post walks through how to advocate for yourselfâeven when itâs hardâand reminds you that your voice matters. Thanks...
about 2 months ago â˘Â 1 min read
Hi Reader, Have you ever walked out of a doctorâs office feeling more frustrated than helped? You try to explain your symptoms, your history, whatâs been working (and what hasnât)âbut instead of feeling heard, youâre met with interruptions, contradictions, or that dreaded condescending tone. Itâs exhausting. And unfortunately, itâs far too common for those of us living with chronic illness. Recently, I had one of those appointments. The kind that leaves you second-guessing yourself, even...
about 2 months ago â˘Â 1 min read