ðŠI create resources to help people adapt to living with chronic illness so they can thrive.
ð When tracking your energy makes things worse
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Hey there Reader, Something I've been thinking about lately â and finally wrote about this week â is how energy tracking advice almost always skips the part where it tells you what to do when the data doesn't lead to a fix. Most of it assumes you're starting from neutral. That a bad day is an outlier to troubleshoot. That if you just find the right system and stay consistent, you'll get ahead of your crashes. For a lot of us, that's not how it works. And when tracking is built on that logic, it stops feeling like useful information pretty quickly. It starts feeling like a record of everything you haven't been able to fix. The new post this week is about that gap â and about a different way to think about what tracking is actually for. Not a performance review. A map. If you've tried tracking and ended up feeling worse, or if you haven't started yet because it already sounds exhausting, it might be worth a read. Read it now: How to Track Your Energy With Chronic Illness Without Making Yourself Feel Worseâ Talk soon, |
April Smith | The Thriving Spoonie
ðŠI create resources to help people adapt to living with chronic illness so they can thrive.
Hi Reader, If you've ever walked out of an appointment more tired than when you walked in, even though "all you did" was talk for twenty minutes, this one's for you. Advocating for yourself in an appointment isn't one task. It's tracking your symptoms, reading the room, watching your tone, and deciding in real time what's worth pushing on, all while your body may already be running on empty. That's a lot of invisible work that never shows up as "work" from the outside, which is part of why...
Hey Reader, I want to talk about something that comes up in this community more than almost anything else â and still somehow doesn't get named clearly enough. Medical gaslighting. It's what happens when a provider closes the door on investigation before it should be closed â attributing your symptoms to stress, citing your age or body size as the explanation, or treating a partial finding as the whole answer. And if you've experienced it, you probably already know the particular kind of...
Hey Reader, There's a particular kind of frustration that comes with feeling like you're trying to manage your illness well and still somehow falling short. Like you're doing everything you can think of, and it's still not working the way you hoped. This week's post is about the patterns that tend to make chronic illness management harder in pretty consistent ways. Not because anyone is doing something wrong, but because some of these habits emerge almost naturally from living with a chronic...