πͺI create resources to help people adapt to living with chronic illness so they can thrive.
π‘ Your body has been trying to tell you something
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Hi Reader, Have you ever had a day where nothing was technically wrong, but something felt off anyway? Not a symptom exactly. More like a shift. A heaviness you couldn't place, or a flatness that didn't quite make sense. For a long time, I explained those moments away. I'm probably just tired. I'm probably overthinking it. And by the time I was sure something was actually happening, I was already in it. That's what this week's post is about β the early signals your body sends before things get harder, why they're so easy to miss, and why chronic illness makes them especially difficult to trust. Not because the signals aren't there. But because so many of us have learned, through years of being dismissed, to dismiss ourselves. It's a post I've wanted to write for a while. I hope it lands somewhere useful for you. Read the post β The Body Signals Chronic Illness Taught Me to Stop Ignoringβ Talk soon, |
April Smith | The Thriving Spoonie
πͺI create resources to help people adapt to living with chronic illness so they can thrive.
Hi Reader, Every August the same advice shows up: get your mornings together, build a routine, start the day with momentum. It's aimed at a body that gets to choose what happens next, and that's just not how mornings work when you're managing chronic illness. This week's post is about what actually helps instead. Knowing your non-negotiables, the few things that truly have to happen. Sketching out a full-capacity and a low-capacity version of your morning before you need them. Checking in...
Hi Reader, I want to tell you about the part of self-advocacy nobody warned me about. For years I thought the whole battle was getting brave enough to speak up β with my partner, with coworkers, with doctors who didn't want to hear it. And that part is real. It took me a long time to stop hinting at what I needed and just say the actual thing out loud. But here's what I didn't expect: even after I got braver, I'd still walk into appointments and blank on the details that actually mattered....
Hi Reader, I've been keeping a mental tally lately. The phone calls. The portal messages that never got a real answer. The forms that ask for information I already gave someone else last month. I don't write any of it down anymore. I just carry it, the way you carry a phone number you've dialed so many times it's stopped feeling like information and started feeling like a reflex. Here's the thing I keep coming back to: none of this shows up on a calendar as "work." There's no meeting called...