Hi, Reader! I want to start with something important: you are not the problem. You've tried harder than most people will ever understand. You've set the alarms, built the schedules, color-coded the planners. You've pushed through symptom days to keep the streak alive. And then your body did what it does, and the whole thing fell apart â and somehow you ended up feeling like you failed. You didn't. The framework did. The consistency model most of us have been handed assumes something your body...
11 days ago âąÂ 1 min read
Hi Reader, For a long time, I thought pacing meant cutting back. Doing less. Cancelling more. Shrinking my life until it fit inside my energy. And honestly? That framing made me resist it. What I eventually realized is that pacing with chronic illness isnât about restriction. Itâs about structure. Itâs about protecting your baseline so youâre not constantly recovering from energy crashes. That shift changed everything for me. Because once pacing became foundational instead of reactive, my...
18 days ago âąÂ 1 min read
Hi Reader, When I was first diagnosed, I thought the hardest part would be the symptoms. I was wrong. The symptoms were real, yes. Disorienting. Limiting. Sometimes scary. But what caught me off guard was everything around them. The silence. The well-meaning comments. The identity shift. The subtle pressure to âhandle it well.â I originally wrote a version of this post in 2024. I recently went back and fully updated it to reflect what I understand now â with more clarity, more depth, and more...
25 days ago âąÂ 1 min read
Hi Reader, Thereâs a belief I hear over and over again in the chronic illness community. âIâm just bad at boundaries.â It sounds self-aware. Responsible. Honest. But itâs usually carrying something heavier underneath. When youâre living with chronic illness, unpredictable energy, and fluctuating symptoms, boundaries that protect energy arenât a personality trait. They arenât about being confident enough or assertive enough. Theyâre about adapting to reality. In this weekâs post, Iâm breaking...
about 1 month ago âąÂ 1 min read
Hi Reader,Thereâs a specific kind of exhaustion that doesnât come from doing too much. It shows up on days when you didnât leave the house. When your to-do list looks reasonable. When nothing âbigâ went wrongâand yet you still feel completely drained. If you live with chronic illness, that exhaustion usually isnât physical overexertion. Itâs invisible work. The constant mental calculations.The emotional labor of managing expectations.The energy spent preparing, anticipating, adjusting, and...
about 1 month ago âąÂ 1 min read
Hi Reader, Iâve been thinking a lot lately about how often people pleasing sneaks into life with chronic illness without us even noticing. Not the obvious kind.The quiet kind. The kind that looks like pushing a little longer, explaining a little more, resting a little later. The kind that feels responsible, considerate, and necessary⊠right up until your body starts pushing back. I wrote a new post this week about people pleasing and chronic illness, and itâs a tender one. Not because it...
about 2 months ago âąÂ 1 min read
Hi there Reader, I wanted to share something a little different this week. I just updated an older blog post on burnout and chronic illness. Not a light edit, but a real revision that reflects how my understanding of burnout has changed over time, shaped by lived experience, boundaries I had to learn the hard way, and a much clearer picture of what doesnât work. Burnout with chronic illness isnât loud for most of us. It doesnât always look like a breakdown. More often, it shows up as quiet...
about 2 months ago âąÂ 1 min read
Hi Reader, Thereâs a phrase I hear all the time in the chronic illness space, and Iâve said it myself more times than I can count. âIâll catch up when I have more energy.â It sounds reasonable. Responsible, even. And yet, if youâve been living with chronic illness for a while, youâve probably noticed how often that plan quietly falls apart. The catch-up day takes more out of you than expected. The next few days feel harder. And suddenly youâre behind again, wondering why this keeps happening....
about 2 months ago âąÂ 1 min read
Hi Reader, If self-compassion has felt distant lately, awkward, or just plain unavailable, this is for you. Not in a âyou should be kinder to yourselfâ way. More in a âthere might be a reason this feels hard right nowâ way. A lot of chronic illness advice treats self-compassion like a skill you can strengthen if you just try harder or practice more consistently. But when youâve spent years overriding your body, managing symptoms, and staying functional under pressure, kindness doesnât always...
2 months ago âąÂ 1 min read